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SUDEP Awareness Day 2016 encourages people with epilepsy to take key steps to reduce their risk

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SUDEP Awareness Day aims to improve awareness of SUDEP by highlighting key risks and steps that people with epilepsy can take to reduce their risk. Launched by UK Charity SUDEP Action on 23 October 2014, the awareness day shines a light on the largest cause of death in people with epilepsy, helping empower those with the condition through increased awareness.

Sudden Unexpected Death in Epilepsy (SUDEP) is when a person with epilepsy dies suddenly and prematurely and no other cause of death is found. Not everyone with epilepsy is at risk of SUDEP, and researchers have found that there are steps that people with epilepsy can take to reduce the risk.

If you have epilepsy we encourage you to:

– Take your medication regularly and reliably.
– Speak to your doctor before making any changes to your medication.
– Make sure you have regular reviews.
– Discuss any lifestyle changes such as having a baby or going to university with your doctor.
– Avoid excess alcohol consumption and using recreational drugs
– Tell your doctor if your seizures have changed.
– Not everyone with epilepsy is at risk, it is important you discuss your risk with your health professionals.

SUDEP Awareness Day brings people with epilepsy, epilepsy organisations and bereaved families together to raise awareness of SUDEP. This year, more than 80 international organisations and patient groups have registered their support for the online campaign which runs from 21st to 23rd October. Registrants receive free online campaign resources such as Facebook and Twitter Covers. People can also download the resources here

To find out more visit the campaign microsite: www.sudepawarenessday.org
To learn more about SUDEP please visit www.sudepawarenessday.org/what-is-sudep
To learn more about SUDEP Action visit: www.sudep.org

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talkhealth Blog

May 19, Eczema May Reduce Risk Of Skin Cancer

It has been reported that people with eczema could be less likely to develop skin cancer. A study has shown that eczema causes an immune response that causes the body to shed skin cells that could be potentially cancerous. This study may show there are some good health benefits to having eczema. I have always felt that my eczema may reduce the chance of me developing skin cancer, but for a different reason. As eczema sufferers we have sensitive skin. If I go out in the sun for a short time without wearing sun screen, I go a little tomato red in colour! So for the majority of time I am wearing high factor sun protection. Which has been recommended for years, to help reduce the damage that the sun can do to our skin. A little sunshine can help. Alot can have detrimental effects. You can read an article from Medical News Today, by clicking below
Eczema Blog

Jun 2, Sublingual Drops Being Used To Help Reduce Allergies

A network of allergy clinics, known as AllergyEasy, are using sublingual drops to help reduce food allergies. Sublingual drops are put under the tongue. Here they are absorbed into the bloodstream through certain cells in the mouth. Food allergies can trigger the symptoms of eczema. These drops maybe the only other way of helping to reduce food allergies, apart from simply avoiding the offending food. It will be very interesting to see how effective these drops are
Eczema Blog

Tips to Reduce the Eczema Itch During Summer.

I used to love summer.  That was before I had a child with eczema.  Suddenly I came to dread the summer months, as instead of improving Miss T’s skin (as everyone was sure it would) it became much worse in the warm weather and she would be constantly covered in eczema and hives.

Miss T dressed for the sun.

The heat can make our children incredibly itchy and it’s often a real challenge to keep them cool.  Although for many eczema sufferers sunshine improves their skin, for some the sun means big flare ups and itchy nights with little to no sleep at all.  Children with eczema tend to be warmer than the average child.  It’s as if their body’s thermostat is set slightly higher than normal and so keeping them cool is really important in trying to break the itch-scratch cycle.

We often get asked by parents how to keep their children cool in the summer months.  Here are some of our suggestions, along with some innovative ideas that parents have suggested to us.

Clothing

When the sun came out Miss T was desperate to run around with the other children outside.  Bare legs were an absolute no-no as it would be only minutes before she had scratched them until they bled.  Very lightweight pure cotton leggings and long sleeved tees really helped and meant that she could still wear pretty dresses and skirts over the top.  Out of desperation for something pretty for her to wear, we also designed these lightweight ninja trousers.

Ninja trousers to stop itchy legs

The buttons on the cuffs were to try to limit her legs exposure to grass pollen and also to stop her being able to pull them up and scratch behind her knees!

Cooling Creams

We’ve always kept our emollients in the fridge during the summer months as applying a chilled cream can really help to soothe the maddening itch.  One mum actually applies cream to the inside of her little ones pyjamas and then puts them in the fridge (inside a sealed bag) to help cool him down at bedtime.

Wet Wrap Therapy

Using Wet Wrap Therapy is a fantastic (and far easier) way to keep an itchy child cool at night and also a great way to add moisture back into their skin. First bathe the child to soak their skin and then pat dry and apply a heavy layer of cream or balm.  Next dress your child with a damp layer of bandages or wet wrap suit and then add a light, dry layer of clothes over the top.   As the water evaporates it has a cooling effect which can really help to relieve the itching.

Wet wrap suit to add moisture back into the skin

Pollen

With the warmer weather comes the added irritant of increased pollen levels.  Try not to let your child play in freshly mown grass and keep their skin covered in a light material at all times.  Pure cotton or bamboo fabrics allow the skin to breathe and are much less irritating than man-made fabrics. If pollen is a known trigger for your child then it’s worth considering drying washing inside, away from airborne pollen that can attach itself to clothes.  Unfortunately dust mites also thrive in warm weather so washing bedding and sofa covers more frequently can really help too.

Paddling Pools

Splashing around in a paddling pool is a rite of passage for most children.  However it can be far more challenging when your child has eczema.  We would apply moisturizer an hour before we went out, followed at least half an hour later by sun tan lotion.  As soon as we got home we would have to bath Miss T and reapply all of her creams. We found that Green People’s Organic Children’s sun tan cream is the only one that didn’t irritate her skin, but a lot of parents also swear by Sunsense Ultra.

A few years down the line and we are coping far better in the hot weather, although we still get flare ups, and a high pollen count is also a trigger for frenzied itching. Probably one of my most memorable summer days was the first time Miss T went out with bare arms and legs – such a simple thing for most children – but a turning point in her eczema and so a very special day for us.

For more tips on helping with eczema take a look at our Top Ten Tips.

 

 

 

 

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