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What’s your diagnosis? (March 2018)

A 43-year-old man went to the emergency room with a symmetrical rash of palpable purpura on his legs. He also complained of a fever and arthralgia, but denied any headache or neck pain. The patient disclosed a current infection with hepatitis C virus. (Photo courtesy of ©VisualDx 2017)
Dermatology Times – Dermatology

Rare Disease Day 2018

Rare Disease Day

Today is the 28th February and a very special day…today is Rare Disease Day!

Rare Disease Day is help on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.

Did you know that 300 million people around the world have rare disease covering over 6000 diseases? So rare is not so rare after all?

For 2018 this year’s theme is ‘Rare needs Research’ Research is crucial for improved care, treatment and potential cures. This day is also to raise awareness with policy makers and medical professionals to show how rare diseases impact patient’s lives.

So today I am joining in with the #ShowYourRare campaign and I have produced a video on YouTube, which you can take a look at below, that talks about today and what it is like living with my rare illness Pure Autonomic Failure.

Remember we may be rare but we have ROAR!

talkhealth Blog

Tinnitus Awareness Week 2018

Tinnitus Awareness Week is running from 5-11 February this year. The aim of the week is to raise awareness of the condition, which affects approximately 1 in 10 of the population.

A recent British Tinnitus Association survey found that just under a third of UK parents (32%) think children under the age of 10 can have tinnitus; and just 37% think it can affect children aged 10 to 16.

The research, which coincides with Tinnitus Week and is part of the charity’s Kids Talk Tinnitus, also revealed many parents are unaware of the common signs of the hearing condition in children, such as anxiety or difficulty concentrating.

To help tackle the problem, the charity has created guidance for both parents and teachers.

 

 

You can find out more about Tinnitus via the British Tinnintus Association website via this link

You can also join in the Thunderclap using the hashtag #TinnitusWeek across your social media channels

If you think you have Tinnitus, listen to these sufferers talking about how their Tinnitus sounds

talkhealth Blog